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Greg Cohen
Increasing Patient Connectivity Through
Social Media
This video is from
BlogWell
San Francisco
June 20, 2011
socialmedia.org/blogwell
SocialMedia.org
Case Studies
This presentation is from
BlogWell
Bay Area
August 6, 2013
socialmedia.org/blogwell
#blogwell @gcohen85
Jérôme and Raffaele, living with epilepsy
Increasing
Patient
Connectivity
Through Social
Media
Presented by:
Greg Cohen
#blogwell @gcohen85
The thoughts and opinion
represented in this presentation
reflect those of the presenter,
Greg Cohen,
and not UCB.
#blogwell @gcohen85
Greg Cohen – greg.cohen@ucb.com
Manager, Social Media & Influence – UCB
#blogwell @gcohen85
Defining patient centric marketing
#blogwell @gcohen85
PCM gives patients the opportunity to express
themselves
Listen to patients to
understand what they
want/need
Center your project brief
on the answer to “What
do our patients want?”
Consider the language
your patients use and
the response you want
to elicit
Develop programs to
elicit feedback and give
your patients the
opportunity to EXPRESS
themselves
#blogwell @gcohen85
Program objectives are both useful and uplifting
Insights into patient
thoughts and activities
Descriptions of Patient-
Doctor Interactions
General Direction for
Quantitative &
Qualitative Research
Patient success stories
Insight into content /
programs they WANT
#blogwell @gcohen85
Epilepsy is isolating and confusing
More than 2M people in the US are
living with epilepsy
Epilepsy is the 4th most common
neurological disorder in the US
10% of Americans will experience a
seizure in their lifetime
There are multiple types of seizures,
such as generalized and partial-onset
seizures
Because the condition has been so
misunderstood, many people with
epilepsy suffer from stigma and
isolation
#blogwell @gcohen85
EA on Facebook
EpilepsyAdvocate
Magazine
EA Patient Programs
Epilepsy
Advocate.com
EA on YouTube
The Epilepsy Advocates
The multimedia Epilepsy Advocate program was designed to
engage patients in conversation across various media
#blogwell @gcohen85
Facebook enables community for increasingly open &
moderated discussion
Unmet Need: Isolation, lack of understanding and stigma created a
need for a community providing education, support, and connection
2009: Page Launch with
no commenting
2011: Turned on
open commenting
2013: Began Real Time Engagement to
be more responsive to patient needs
#blogwell @gcohen85
Epilepsy Advocate Facebook Page utilizes insight
and innovation to drive engagement
#blogwell @gcohen85
My Four Words… a public relations campaign to
drive engagement that started offline…
Encourage patients to
explain their experience
living with epilepsy in a mere
4 words
It included local and national
events and media outreach…
#blogwell @gcohen85
EA Facebook
Social/Traditional Media
Third-Parties
…with storytelling that expanded to have even
greater impact in social media
#blogwell @gcohen85
Create opportunities for Rheumatoid Arthritis
patients to share their personal victories over RA
#blogwell @gcohen85
Move beyond enabling patients to participate;
engage through thanking them
#blogwell @gcohen85
“Unfortunately, normal
teaching didn’t work for
these kids…Don’t you
see, they’re gonna have
to survive in the world
of the future. If they
learn how to learn,
they’ll be able to survive
anywhere!” –Mystery
Teacher…
Internal education is the key to making a patient-
centric organization
Be positive – anyone can
learn about Social Media with
patience and a positive
attitude
Encourage creative thinking
beyond the rules of
Compliance and Regulatory
bodies THEN reshape in
context of what’s possible
today
Don’t rely on the education
tools of the past – learn to
think in terms of the
requirements of the future
#blogwell @gcohen85
Setup processes that make everyone comfortable,
then STICK to those processes
#blogwell @gcohen85
In the end everything must come back to patients
#blogwell @gcohen85
Questions?
Greg Cohen
Manager, Social Media &
Influence
Greg.cohen@ucb.com
@gcohen85
#blogwell
Learn more about past and
upcoming BlogWells
socialmedia.org/blogwell
This video is from
BlogWell
San Francisco
June 20, 2011
socialmedia.org/blogwell
SocialMedia.org
Case Studies
This presentation is from
BlogWell
Bay Area
August 6, 2013
socialmedia.org/blogwell

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BlogWell Bay Area Social Media Case Study: UCB Pharma, presented by Greg Cohen

  • 1. Greg Cohen Increasing Patient Connectivity Through Social Media This video is from BlogWell San Francisco June 20, 2011 socialmedia.org/blogwell SocialMedia.org Case Studies This presentation is from BlogWell Bay Area August 6, 2013 socialmedia.org/blogwell
  • 2. #blogwell @gcohen85 Jérôme and Raffaele, living with epilepsy Increasing Patient Connectivity Through Social Media Presented by: Greg Cohen
  • 3. #blogwell @gcohen85 The thoughts and opinion represented in this presentation reflect those of the presenter, Greg Cohen, and not UCB.
  • 4. #blogwell @gcohen85 Greg Cohen – greg.cohen@ucb.com Manager, Social Media & Influence – UCB
  • 6. #blogwell @gcohen85 PCM gives patients the opportunity to express themselves Listen to patients to understand what they want/need Center your project brief on the answer to “What do our patients want?” Consider the language your patients use and the response you want to elicit Develop programs to elicit feedback and give your patients the opportunity to EXPRESS themselves
  • 7. #blogwell @gcohen85 Program objectives are both useful and uplifting Insights into patient thoughts and activities Descriptions of Patient- Doctor Interactions General Direction for Quantitative & Qualitative Research Patient success stories Insight into content / programs they WANT
  • 8. #blogwell @gcohen85 Epilepsy is isolating and confusing More than 2M people in the US are living with epilepsy Epilepsy is the 4th most common neurological disorder in the US 10% of Americans will experience a seizure in their lifetime There are multiple types of seizures, such as generalized and partial-onset seizures Because the condition has been so misunderstood, many people with epilepsy suffer from stigma and isolation
  • 9. #blogwell @gcohen85 EA on Facebook EpilepsyAdvocate Magazine EA Patient Programs Epilepsy Advocate.com EA on YouTube The Epilepsy Advocates The multimedia Epilepsy Advocate program was designed to engage patients in conversation across various media
  • 10. #blogwell @gcohen85 Facebook enables community for increasingly open & moderated discussion Unmet Need: Isolation, lack of understanding and stigma created a need for a community providing education, support, and connection 2009: Page Launch with no commenting 2011: Turned on open commenting 2013: Began Real Time Engagement to be more responsive to patient needs
  • 11. #blogwell @gcohen85 Epilepsy Advocate Facebook Page utilizes insight and innovation to drive engagement
  • 12. #blogwell @gcohen85 My Four Words… a public relations campaign to drive engagement that started offline… Encourage patients to explain their experience living with epilepsy in a mere 4 words It included local and national events and media outreach…
  • 13. #blogwell @gcohen85 EA Facebook Social/Traditional Media Third-Parties …with storytelling that expanded to have even greater impact in social media
  • 14. #blogwell @gcohen85 Create opportunities for Rheumatoid Arthritis patients to share their personal victories over RA
  • 15. #blogwell @gcohen85 Move beyond enabling patients to participate; engage through thanking them
  • 16. #blogwell @gcohen85 “Unfortunately, normal teaching didn’t work for these kids…Don’t you see, they’re gonna have to survive in the world of the future. If they learn how to learn, they’ll be able to survive anywhere!” –Mystery Teacher… Internal education is the key to making a patient- centric organization Be positive – anyone can learn about Social Media with patience and a positive attitude Encourage creative thinking beyond the rules of Compliance and Regulatory bodies THEN reshape in context of what’s possible today Don’t rely on the education tools of the past – learn to think in terms of the requirements of the future
  • 17. #blogwell @gcohen85 Setup processes that make everyone comfortable, then STICK to those processes
  • 18. #blogwell @gcohen85 In the end everything must come back to patients
  • 19. #blogwell @gcohen85 Questions? Greg Cohen Manager, Social Media & Influence Greg.cohen@ucb.com @gcohen85 #blogwell
  • 20. Learn more about past and upcoming BlogWells socialmedia.org/blogwell This video is from BlogWell San Francisco June 20, 2011 socialmedia.org/blogwell SocialMedia.org Case Studies This presentation is from BlogWell Bay Area August 6, 2013 socialmedia.org/blogwell